Liam's doctor appointments last Wednesday went very well!
We were pleased that his skull surgeon cleared him from wearing another helmet for the next six months and remain optimistic that he won't ever need to wear another one! He was also cleared to sleep in his crib rather than in his car seat, a precaution that was being taken to ensure his skull continued to heal properly post-surgery.
His heart surgeon cleared him for the upcoming surgeries and did an echo, an EKG, and got pressures in both arms and legs. His pressures looked great, as did his echo. Dr. Liske said his EKG looked like an EKG of a normal child his age (!!!). His echo revealed that the ASD has closed (the ASD is the hole in his heart). The coarc repair continues to hold steady and his heart is growing normally. They will continue to monitor the bicuspid aortic valve and an area on the left side of his heart that continues to measure a little smaller than normal and has a ridge where one shouldn't be. So, all looks great!
Still no surgery date, so I guess we'll have to prompt somebody this week to get things moving. I will certainly keep you posted with a date as soon as I have one!
If I could draw your attention to one of the blogs on the right side of the page: Gavin has HLHS and had his third open heart surgery on April 22 to convert his heart to a two-chamber heart. Initially he was doing really well but suffered a set-back over the weekend. Please pray that he continues to recover and pray for strength for his family. They have encountered some unusual obstacles in that they traveled to California for the surgery so they are away from some of their usual support people in their lives. Additionally, the hospital they are in locked down at one point last week due to the Swine Flu epidemic. Gavin's mother was locked in Gavin's room and his father was locked out of the room. It has been a very difficult time for the entire family and though they are holding up well, I know they need all the prayers that you can offer up to God.
In Christ,
Lisa
"He who dwells in the shelter of the Most High will rest in the shadow of the Almighty." - Psalm 91:1
skip to main |
skip to sidebar
About Me
- Jelly Bean's Family
- "Jelly Bean" is our affectionate nickname for our son, Liam. He was born on August 9, 2007. He has three older siblings and two parents who welcomed him with open arms and loving hearts. He was given his nickname by our OB at our 8 week ultrasound, and the name just stuck. Initially diagnosed in utero with a severe congenital heart defect known as HLHS, we were happy to learn he had less serious heart problems upon his arrival. He has had one heart surgery and we are monitoring his heart to determine if he will need more surgeries in the future.
No comments:
Post a Comment