Saturday, September 1, 2007

Sorry it's been so long since the last update!

Anyone who has spent any time at all with a newborn knows that those little people have a way of taking up an extraordinary amount of time! Add to that a jealous little 2 year old sister, NG feedings, pumping, and multiple doctor appointments, and you can understand why it's been so long since the last update.

Liam is gaining weight! Yahoo! At the cardiologist appointment yesterday, he FINALLY weighed in above his birth weight. Can't tell you how much more, because I have yet to find the time to look up the formula for converting kilograms to lbs and ounces, but I know he is over 6 lbs 13 oz, and his birth weight was 6 lbs 12 oz. The cardiologist was pleased with what he saw and we don't go back to see him until October 31. They are still watching the ASD (hole in his heart) and if it doesn't close in 4-6 months, we're looking at another surgery. They also continue to monitor his bicuspid aortic valve and there is a possibility we'll be looking at another surgery down the road to repair that, as well. However, his coarc repair continues to perform beautifully, and he passed all the tests they threw at him yesterday with flying colors.

We remain concerned about feeding issues, not because he isn't gaining, but because he isn't eating on his own yet. We continue to send the vast majority of his feedings down his NG tube. By now we had hoped to be off the NG tube entirely, so that is discouraging. His cardiologist wanted to give him until this next Tuesday and if things aren't improving, we'll be referred to a feeding specialist for an additional assessment.

Liam is a sweet baby who continues to sleep a lot, except in the middle of the night when Mama is up feeding him. Then he wants to throw a 2 hour party. As a result, Mama is exceedingly sleep deprived and has difficulty composing coherent sentences at various points in time during the day. This is also the reason for the lack of blog updates and pictures. We will post pictures as soon as Lisa can manage to achieve the mental capacity to learn how to do so (Heather, our photographer extraodinaire, has been kind enough to post all the ones that you see on the blog so far). Between pumping, doc appts, and being up with Jelly Bean a lot at night, blogging has definitely occupied the lowest priority slot in our house.

Lisa continues to recover from her C-section (actually, it was the speediest recovery known to mankind). Unfortunately, it seems that she is now paying for the fast recovery by being worn out over the smallest exertion, but she has decided she has no choice but to suck it up and keep going. ;) Bill is now back at work and trying to concentrate on work-related things when his mind is often more focused on what's going on at home. Jami, Liam's oldest sister, has been kind enough to offer a ton of help. She's been home since the day before Liam was born and has been WONDERFULLY helpful in all sorts of ways. We're sure we would have lost our minds by now without her.

Overall, we're doing well, and we extend many, many thank yous to our kind church family and neighbors for keeping us in meals for the past week!! We honestly don't know what we'd do without everyone's help, support, and prayers!

In Christ,
Bill and Lisa

3 comments:

Anonymous said...

Lisa
So good to here from you. Glad to here he has gained weight I will continue to pray that Liam will feed on his own, I know he will. Tell Sara Bear I said hello, and I think eventually she will not be so jealous of little Liam. As for you I know its hard and you are so dedicated find some time to just rest and reflect. Jamie seems so sweet to be helping you out, what a wonderful thing for her to do for you all. Hang in there, I still can't wait to see you, Sarah and Liam again. Take care, god bless and your always in our prayers.
Love Mrs. Kathy

Anonymous said...

Hi Lisa,
If you need someone to talk to at those midnight feeding parties, call me. Matthew is up then, too. He's a GREAT sleeper in the day, but as soon as the sun sets, we see a whole different side of him...
I've never gone through what you are going through, but I understand what it is to be stressed out over a baby who doesn't eat well and isn't gaining weight. We are dealing with it again. We will keep you in our prayers.
Love, Carla

Anonymous said...

Lisa,
Thanks for the update! Glad to hear that you are all at home together again. We'll keep praying for you all. I'd write something profound, but I seem to be lacking brain cells these days :-) I think of you often and am so glad little Liam is at home with you now.

We are about 2 weeks from baby girl's due date, and I served her an eviction notice today...I'm ready for her to make her appearance!

Sleep when you can :-)

Love,
Kate